Scotland rugby legend Doddie Weir on battling MND with a smile
At six feet and six inches tall, he climbs over almost everyone and if you don’t spot him the first time, he usually wears a shiny, scaly suit from head to toe. With a broad, beaming smile to complete the ensemble, Weir is impossible to ignore.
Scottish broadcaster Jill Douglas has known him for most of his life, “He is one of the most positive individuals I have ever encountered and always did,” he told CNN. “He has the ultimate joy of life. He loves a party. He loves people. He is a very sociable character. He is funny, but inspired.”
As a rugby player for Scotland, Weir wore a five-position jersey of a locked position and was easily recognizable by his flick of blonde hair framed by a headband to protect his ears. He was once described by noted commentator Bill McLaren as ‘a crazy giraffe’. Even in the successful British and Irish Lions tour of South Africa in 1997, Vir played for his country 61 times.
He was a farmer of the border country, whose athletic prowess took him around the world.
Life is meant to be lived, Wear told CNN: “Life should have a little laughter and a little smile, because you’re only here once and you have to enjoy yourself.”
Everything changed for him, however, in 2016, when Weier was diagnosed with a neurodegenerative disorder motor neurone disease (MND). He first noticed a problem when he caught his hand in a door, and when it still did not recover several months later, he called for a medical evaluation. The diagnosis was devastating.
His doctors told him clearly that his life expectancy could not exceed the last 18 months and that he would be in a wheelchair within a year.
Speaking from his home near Edinburgh on a remote video link, Weir summarized the brutal facts of life with MND. It is so terrible when you get a diagnosis. It is basically a muscle-wasting disease. You cannot eat, you cannot bathe, you cannot go to the shower, toilet, dress. You cannot finally speak. , You cannot swallow, you cannot breathe. ”
As he recounts all the horrors of a disease that he has endured, he may at least reflect on something positive: he is still here. And his zealous nature prevents him from living in darkness for long; Somehow he is able to have a laugh while concluding, “[So] This is not the best news you can get! “
Jill Douglas has known Vir since he was a teenager; They met through their love of horses.
Douglas said, “He is a very good horseman, would you believe”. “On a very big horse, obviously!”
She said she was “in pieces” when her longtime friend shared the news.
“It’s the worst diagnosis. If you talk to people in the medical profession, it’s a diagnosis they never want to share with the patient because there is no cure, no cure. And that’s your It is a terrible way to live the end of life., “He mixed.
When she began the painful process of telling the world and finding out how her family life with three teenage sons would be affected, her friends asked how they could help. The result was the ‘Mera Naam’ 5 Dodi Foundation, which has raised over eight million dollars to seek a cure in just three years and another million to directly help MND patients.
Douglas now serves as the CEO of the Foundation and admits that he initially faced a difficult learning curve but is now seeing progress.
“There is a one in 300 chance of suffering from motor neurone disease in our lifetimes,” says Douglas. “That’s the harsh truth of it.”
“[But] I think there is a sense that we are really at the peak of the amazing thing, and we really hope that this momentum continues. “
Wear says the foundation has given him a purpose to pursue.
“It has given me a lot of boost and I have been very humble. The generosity has been overwhelming,” he says.
He is pushing experts to work faster, because – from his point of view – there’s really no time to lose.
“I’m asking the professors some interesting questions,” he says.
When it might take him five years to find a cure, his answer was, “Why not a year? What do you need to do in a year? They may not be used to that, but they are doing some great work.” Huh.” idea. “
Wear turned 50 last year and is no longer trying to stop and mow or dominate the lineout, but gets into his new life as if it is still a game.
“Every day for the past four years was like a game of rugby. The game has taught me to never give up,” he says.
“Be mentally positive every day. I have a fight against MND; a little fight is coming down the stairs, maybe she’s drinking a cup of tea, maybe she’s getting off my chair Ho.
Dodgy wear cup
In the face of such a debilitating situation and seemingly impossible odds, Weir’s attitude has been consistently and contagiously positive.
His recent “dodgy aid” campaign captured the imagination of Hollywood star Evan McGregor and Olympic cycling champion Chris Hoy – both fellow Scots as well as Prime Minister Boris Johnson.
Veer’s tireless toil has been identified with many personal accolades, all of which he finds strange.
“I feel very guilty about all the awards,” he admits. “It’s a team effort. It’s a difficult task to accept. I find it easy to help people. I like to thank everyone.”
His legacy is also demarcated with the trophy, the Dodie Weir Cup, which is held every time for the graves which play Wales on the Scotland rugby ground.
“It’s a great trophy,” says Douglas. “It’s the dodgy tartan around the top. It’s these great big handles that we think represent their huge ears, and it’s tall and thin – like she is!”
When Scotland won the trophy last October, it was brought home by team coach Gregor Townsend – a former partner of Wear, so the family could spend some time with it.
“Veer explains,” When you are still alive, a large cup can be obtained in your name, it is quite unbelievable, so I feel very humble, very honored. ”
Scotland won for the first time in 38 years after CNN spoke to Doddy Weir when Scotland defeated Six Nations champions England at their home stadium in Twickenham. Veer was still immersed in the glow of victory and he says that it inspires him to keep going.
“There are probably 10 to 15 thousand rugby players and two professional teams in Scotland,” he said.
“There are 12 professional teams in England and I think there are 250,000 people playing rugby. The underdog is always the Scots. Over the weekend, David beat Goliath and it was a great opportunity. I plan to do the same with MND Have been
“No one has escaped MND. But someone has to win one day, and I hope it will be me and many others who are joining my fight.”